
Early on a monday morning, lia was born. earlier than we thought, but appearing healthy. as the morning wore on, she gradually declined in strength until we decided to take her to the ER next door.
Once there, she Coded and required immediate support with oxygen. The NICU staff came and got her immediately from the ER and brought her upstairs. She continued to decline throughout the following days while the diagnosises began pouring into our ears and crushing our hearts.
Late-term Preemie - 35 weeks 5 days
PPHN - Persistent Pulmonary Hypertension of the Newborn
Meningitis
Group B Strep
Sepsis
Pneumonia
These were just the beginning, as her battle in the NICU added more problems and concerns. Before we left, lia had had many procedures, infiltrated lines, infiltrated PICC line, spinal taps and more. Today she is home with only a few of the remaining problems:
Hemiparalysis of the Right Diaphragm
Hypothyroidism
Chronic Lung Disease.
Delays related to being premature
Delays related to illness requiring ventilator support and immobility.
We are gifted beyond compare to have been able to add Lia to our home.
1 comments:
I definitely understand the taking a break part. I hope all is well with Lia, Zaya, you, and your husband.
I always look forward to seeing new pictures. You take such candid shots of Lia and she is definitely a cutie. Just know that while I don't find my way to the group chat very often, I do think of you and your family.
I always appreciate the wonderful comments you leave on my blog. Hopefully this won't sound stalkerish, but even though our babies are so far apart in age & with different issues, I do feel a connection. (insert creepy music here if needed)
Anyway, I just wanted to say thank you for taking the time to read what I have to say.
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