Lia

Early on a monday morning, lia was born. earlier than we thought, but appearing healthy. as the morning wore on, she gradually declined in strength until we decided to take her to the ER next door.

Once there, she Coded and required immediate support with oxygen. The NICU staff came and got her immediately from the ER and brought her upstairs. She continued to decline throughout the following days while the diagnosises began pouring into our ears and crushing our hearts.

Late-term Preemie - 35 weeks 5 days
PPHN - Persistent Pulmonary Hypertension of the Newborn
Meningitis
Group B Strep
Sepsis
Pneumonia

These were just the beginning, as her battle in the NICU added more problems and concerns. Before we left, lia had had many procedures, infiltrated lines, infiltrated PICC line, spinal taps and more. Today she is home with only a few of the remaining problems:

Hemiparalysis of the Right Diaphragm
Hypothyroidism
Chronic Lung Disease.
Delays related to being premature
Delays related to illness requiring ventilator support and immobility.

We are gifted beyond compare to have been able to add Lia to our home.