
Labels: differences, disability
Early on a monday morning, lia was born. earlier than we thought, but appearing healthy. as the morning wore on, she gradually declined in strength until we decided to take her to the ER next door.
Once there, she Coded and required immediate support with oxygen. The NICU staff came and got her immediately from the ER and brought her upstairs. She continued to decline throughout the following days while the diagnosises began pouring into our ears and crushing our hearts.
Late-term Preemie - 35 weeks 5 days
PPHN - Persistent Pulmonary Hypertension of the Newborn
Meningitis
Group B Strep
Sepsis
Pneumonia
These were just the beginning, as her battle in the NICU added more problems and concerns. Before we left, lia had had many procedures, infiltrated lines, infiltrated PICC line, spinal taps and more. Today she is home with only a few of the remaining problems:
Hemiparalysis of the Right Diaphragm
Hypothyroidism
Chronic Lung Disease.
Delays related to being premature
Delays related to illness requiring ventilator support and immobility.
We are gifted beyond compare to have been able to add Lia to our home.
1 comments:
I had these same feelings when I was so sick. At the beginning Bryan was barely going to be 5. We had to help him understand what seizures were, what to do if I had one, and explain to him why mommy had to have brain surgery. Now, at 9, he is a very compassionate child. He is still a little boy, yet his heart is one to be envied by grown men. He sees other hurting and wants to help. He loves helping younger children do things, and learn things. He finds ways to make others happy. I know his childhood will make him a man of compassion and commitment, and that he will benefit from what he was forced to learn so early. I am now beginning to see that, so it upsets me that much less.
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